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Research Tools
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1. Novel Coronavirus (COVID) Illness - Patient Report (NCI-PR)
Date Published: 3/5/2021
Format: Text
Annotation: Novel Coronavirus (COVID) Illness - Patient Report (NCIPR) is a self-report measure of coronavirus testing, timing, symptoms and treatments. This is a self guided, patient-facing measure. It is recommended that this be administered with the NCIPR-Demographics measure, which includes participant age, brief medical history and additional relevant domains. Novel Coronavirus (COVID) Illness - Patient Report (NCI-PR) https://disasterinfo.nlm.nih.gov/content/files/COVID_Illness_Patient_Report_NCI-PR.pdf
Novel Coronavirus (COVID) Illness – Patient Report (NCIPR) - Demographics https://disasterinfo.nlm.nih.gov/content/files/COVID_Illness_NCIPR-Demographics.pdf


Population: Adults only
Length: 34-87 questions
Administered by: Self Administered/Self Report
Language(s): English
...[See more] [See less]
Type: Guideline/Assessment Tool
Access Notes: Free/Publicly Available

Available Formats: Text

Contact Information: Moriah.Thomason@nyulangone.org
Includes Research Tools: Yes.
ID: 24224. From: Disaster Lit®a database of the U.S. National Library of Medicine.
2. Coronagenes: Protocol
Date Published: 2/8/2021
Format: Text
Annotation: An international population cohort to investigate genetic susceptibility to the novel coronavirus (COVID-19). This study seeks to recruit new participants from the general population during the COVID-19 pandemic into a large genetic epidemiological cohort. Recruitment (and subsequent saliva sampling and antibody testing) will take place remotely. Coronagenes re-purposes much of the infrastructure and expertise from the VIKING II study. This launched in January 2020 and paused in March 2020 due to the pandemic, with over 4,000 participants registered. In Coronagenes, data will be collected at baseline through an online questionnaire and longitudinally for UK participants through linkage to routine NHS data (and where possible other healthcare system data) in electronic health records (EHR).

Language(s): English
...[See more] [See less]
Type: Study Design/Protocol
Access Notes: Free/Publicly Available

The is the protocol for the Coronagenes Study: https://dr2.nlm.nih.gov/search/?q=24210

Available Formats: Text

Contact Information: Jim Wilson, Professor of Human Genomics, University of Edinburgh Email: jim.wilson@ed.ac.uk
Includes Research Tools: Yes.
ID: 24215. From: Disaster Lit®a database of the U.S. National Library of Medicine.
3. Coronagenes
Date Published: 2/5/2021
Format: PDF
Annotation: An international population cohort to investigate genetic susceptibility to the novel coronavirus (COVID-19). This study seeks to recruit new participants from the general population during the COVID-19 pandemic into a large genetic epidemiological cohort. Recruitment (and subsequent saliva sampling and antibody testing) will take place remotely. Coronagenes re-purposes much of the infrastructure and expertise from the VIKING II study. This launched in January 2020 and paused in March 2020 due to the pandemic, with over 4,000 participants registered. In Coronagenes, data will be collected at baseline through an online questionnaire and longitudinally for UK participants through linkage to routine NHS data (and where possible other healthcare system data) in electronic health records (EHR).

Population: All/anyone
Length: 50 questions
Language(s): English

Coronagenes Participant Information Sheet: https://disasterinfo.nlm.nih.gov/content/files/2020-07-08_Coronagenes_PIS_v4.0.docx

Short Daily Questionnaire Specification: https://disasterinfo.nlm.nih.gov/content/files/Short%20Daily%20Questionnaire%20Specification%20v1.0.pdf
Coronagenes Volunteer Consent: https://disasterinfo.nlm.nih.gov/content/files/Consent%20Full.PNG

The protocol for this study can be found in this record: https://dr2.nlm.nih.gov/search/?q=24215
...[See more] [See less]
Type: Guideline/Assessment Tool
Access Notes: Free/Publicly Available

Available Formats: PDF

Contact Information: Jim Wilson, Professor of Human Genomics, University of Edinburgh Email: jim.wilson@ed.ac.uk
Includes Research Tools: Yes.
ID: 24210. From: Disaster Lit®a database of the U.S. National Library of Medicine.
4. Assessment Tool for Laboratories Implementing SARS-CoV-2 Testing: Interim Guidance
Date Published: 10/23/2020
Format: PDF
Annotation: This tool, updated on October 23, 2020, has been designed to assess the capacity of laboratories that have implemented or intend to implement testing for SARS-CoV-2, the virus that causes novel coronavirus disease 2019 (COVID-19). The tool is a shortened version of the 2012 laboratory assessment tool that is widely used to assess national laboratory systems and the capacity of laboratories....[See more] [See less]
Type: Guideline/Assessment Tool
ID: 21642. From: Disaster Lit®a database of the U.S. National Library of Medicine.
5. Interim Guidance on Supporting the Emotional and Behavioral Health Needs of Children, Adolescents, and Families During the COVID-19 Pandemic
Date Published: 10/23/2020
Format: Text
Annotation: This web page details how the COVID-19 pandemic has underscored the need to continue to integrate emotional and behavioral health as part of standard care, and how pediatricians, professionals, families, and agencies can partner together to support the emotional and behavioral health of the nation’s children, adolescents, and families during this public health crisis....[See more] [See less]
Type: Guideline/Assessment Tool
ID: 24161. From: Disaster Lit®a database of the U.S. National Library of Medicine.
6. Guidance Related to Childcare During COVID-19
Date Published: 10/23/2020
Format: Text
Annotation: The aim of the strategies provided within this guidance is to reduce risk of COVID-19 exposure and spread of infection to staff, children, and families involved with early care and education programs. The guidance also explores primary prevention such as immunizations, well child care, and special considerations for children with special health care needs....[See more] [See less]
Type: Guideline/Assessment Tool
ID: 24162. From: Disaster Lit®a database of the U.S. National Library of Medicine.
7. SARS-CoV-2 mRNA Vaccine Development Enabled by Prototype Pathogen Preparedness
Date Published: 10/15/2020
Format: Video or Multimedia
Annotation: With a new infectious disease threat at hand, scientists at the NIH swiftly developed a vaccine candidate against the novel coronavirus that causes COVID-19. The pre-clinical effort for a fast, reliable, and universal vaccine was driven in part by the speaker in this one-hour presentation....[See more] [See less]
Authors: Corbett, Kizzmekia
Type: Instructional/Training Material
ID: 24109. From: Disaster Lit®a database of the U.S. National Library of Medicine.
8. Clinical Guidance: Family Presence Policies for Pediatric Inpatient Settings During the COVID-19 Pandemic
Date Published: 10/12/2020
Format: Text
Annotation: This web page, updated on October 12, 2020, provides answers to frequently asked questions during the COVID-19 pandemic about family presence policies, which are are critical components of family-centered care for all children and are particularly important for children with special health care needs, including those with disabilities, medical complexity, and serious illness....[See more] [See less]
Type: Fact Sheet
ID: 23064. From: Disaster Lit®a database of the U.S. National Library of Medicine.
9. CDC’s Diagnostic Test for COVID-19 Only and Supplies
Date Published: 10/9/2020
Format: Text
Annotation: This web page, updated on October 9, 2020, describes how to order the CDC 2019 Novel Coronavirus (2019-nCoV) Real-Time Reverse Transcriptase (RT)-PCR Diagnostic Panel and supplies. In addition to this test, CDC has developed a diagnostic test that can be used to detect SARS-CoV-2, influenza A, and influenza B viruses at the same time. This test is called the CDC Influenza SARS-CoV-2 (Flu SC2) Multiplex Assay....[See more] [See less]
Type: Guideline/Assessment Tool
ID: 22275. From: Disaster Lit®a database of the U.S. National Library of Medicine.
10. Interim Guidance on the Use of Rapid Antigen Detection Tests for the Identification of SARS-CoV-2 Infection
Date Published: 10/7/2020
Format: Text
Annotation: This web page provides interim guidance on the use of rapid antigen detection tests (RADT) for SARS-CoV-2 in the context of the public health system. These guidelines were developed in collaboration with provincial and territorial public health authorities and will be updated periodically as the science evolves....[See more] [See less]
Type: Guideline/Assessment Tool
ID: 24032. From: Disaster Lit®a database of the U.S. National Library of Medicine.
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