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Currently, NLM is not updating the Disaster Information Management Research Center (DIMRC) website, and is limiting updates to the Disaster Lit database to COVID-19 related data collection tools found in the DR2. We are no longer adding links to other new disaster-related information. The content of select resources from Disaster Lit will be digitized and made available through Digital Collections and Bookshelf.

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Research Tools
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1. Neuro-QoL: Quality of Life in Neurological Disorders
Source: Northwestern University
Date Published: 6/24/2013
Format: Text
Annotation: Neuro-QoL is a set of self-report measures that assesses the health-related quality of life (HRQOL) of adults and children with neurological disorders. Neuro-QoL is comprised of item banks and scales that evaluate symptoms, concerns, and issues that are relevant across disorders, along with measures that assess areas most relevant for specific patient populations. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments....[See more] [See less]
URL: http://www.healthmeasures.net/explore-measurement-systems/neuro-qol
Type: Guideline/Assessment Tool
Includes Research Tools: Yes.
ID: 11236. From: Disaster Lit®a database of the U.S. National Library of Medicine.
2. Assessment Center
Source: Northwestern University
Date Published: 6/2011
Format: Text
Annotation: Assessment Center is a free, online data collection tool that enables researchers to create study-specific websites for capturing participant data securely online. Studies can include measures within the Assessment Center library, as well as custom instruments entered by the researcher. The instrument library includes self- and proxy-report short forms, computerized adaptive tests (CATs), and batteries or profiles from Patient-Reported Outcomes Measurement Information System (PROMIS), Quality of Life in Neurological Diseases (Neuro-QoL), NIH Toolbox, and Health LiTT.

Among other features, Assessment Center also enables downloading library instruments for administration on paper; customization of items or instruments (e.g., format, randomization, skip patterns); real-time scoring of CATs and short forms; storage of protected health information (PHI) in a separate, secure database; automated accrual reports; real-time data export; and ability to capture endorsement of online consent forms. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments....[See more] [See less]
URL: https://www.assessmentcenter.net/
Type: Database/Dataset
Includes Research Tools: Yes.
ID: 11237. From: Disaster Lit®a database of the U.S. National Library of Medicine.
3. Hearing Handicap Inventory for Adults (HHIA)
Source: Northwestern University
Date Published: 1991
Format: PDF
Annotation: The Hearing Handicap Inventory for Adults (HHIA) was designed to both quantify handicap and assess benefit by measuring change in perceived handicap after the fitting of hearing aids. The HHIA is a 25-item self-assessment scale composed of two subscales (emotional and social/situational). This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

Ease of Use in Disaster Setting: Easy
Population: High Risk/Special/Unique Populations
Length: 25 questions
Administered by: Self Administered/Self Report
Language(s): English, Brazilian Portuguese, Italian...[See more] [See less]
URL: http://www.audiologist.org/_resources/documents/diabetes/Hearing%20Handicap%20Inventory%20For%20Adults%20%28HHIA%29.pdf
Type: Guideline/Assessment Tool
Access Notes: Free/Publicly Available

Citation(s):
Newman CW, Weinstein BE, Jacobson GP, Hug GA. Test -retest reliability of the Hearing Handicap Inventory for Adults, Ear Hear. 1991 Oct;12(5): 355-357. PubMed PMID:1783240. https://www.ncbi.nlm.nih.gov/pubmed/1783240. Subscription required.

Remenschneider AK, Lookabaugh S, Aliphas A, Brodsky JR, Devaiah AK, Dagher W, Grundfast KM, Heman-Ackah SE, Rubin S, Sillman J, Tsai AC, Vecchiotti M, Kujawa SG, Lee DJ, Quesnel AM. Otologic outcomes after blast injury: the Boston Marathon experience. Otol Neurotol. 2014 Dec;35(10):1825-34. doi: 10.1097/mao.0000000000000616. Epub 2014 Nov 14. PubMed PMID: 25393974. https://www.ncbi.nlm.nih.gov/pubmed/25393974. Subscription required.

Contact information:

Institution: Northwestern University Audiology Clinic
Address: 2240 Campus Drive, Evanston, IL 60208
Phone: 847-491-3165
Fax: 847-467-0410
Includes Research Tools: Yes.
ID: 12913. From: Disaster Lit®a database of the U.S. National Library of Medicine.
4. Numeric Pain Rating Scale
Source: Northwestern University
Date Published: 1989
Format: PDF
Annotation: This tool measures the subjective intensity of pain that a person has experienced in a 24-hour period. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

Ease of Use in Disaster Setting: Easy
Flesch-Kincaid Reading Level: 8.3
Population: All/Anyone
Length: One question
Administered by: Self Administered/Self Report, Lay Interviewer
Language(s): English...[See more] [See less]
URL: https://www.sralab.org/rehabilitation-measures/numeric-pain-rating-scale
Type: Guideline/Assessment Tool
Access Notes: Free/Publicly Available

Citation(s):
Yabuki S, Ouchi K, Kikuchi S, Konno S. Pain, quality of life and activity in aged evacuees living in temporary housing after the Great East Japan earthquake of 11 March 2011: a cross-sectional study in Minamisoma City, Fukushima prefecture. BMC Musculoskelet Disord. 2015;16(1):246. doi: 10.1186/s12891-015-0711-2. Epub 2015 Sep 12. PubMed PMID: 26359245; PubMed Central PMCID: PMC4566298. https://www.ncbi.nlm.nih.gov/pubmed/26359245. Subscription not required.

Contact information:

Contact person: Jennifer Moore PT, DHS
Institution: Rehabilitation Institute of Chicago, Northwestern University
Email: rehabmeasures@ric.org
Includes Research Tools: Yes.
ID: 12894. From: Disaster Lit®a database of the U.S. National Library of Medicine.
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